![]() Alternatively, years of being undiagnosed and misunderstood can lead to an array of mental health issues which are then thought to be the cause of issues. The extreme demand avoidant behaviours may be dismissed, or they may be mislabelled as anti-social personality or conduct disorders. Securing a diagnosis of ‘ASD with a PDA profile’ is difficult at any age, but especially as an adult. Time and time again we hear that, due to PDA behaviours being misunderstood or misdiagnosed, their needs are not being met, placements are breaking down and they are being moved on again and again without anyone recognising the true nature of their difficulties. ![]() The PDA Society speaks daily with PDA adults and their families, carers or partners. We’re hoping that this report will prompt everyone providing services and support to ask themselves ‘might PDA be the answer to this person whose behaviour is perplexing?’Īdults with a PDA profile may be in social care placements because they have been diagnosed with autism and identified as needing support or because they have developed mental health difficulties. 78% reported difficulties with daily tasks.70% of respondents felt they would benefit from support from social care but only 8% considered they had enough support to meet their needs.70% of the nearly 1,500 people surveyed said that lack of understanding or acceptance of PDA was a barrier to getting support.People with a PDA profile are at particular risk of being misunderstood, as a recent survey by the PDA Society highlighted: Displaying obsessive behaviour that is often focused on other people.Experiencing excessive mood swings and impulsivity.Appearing sociable, but lacking understanding.Using social strategies as part of avoidance (eg.Resisting and avoiding the ordinary demands of life. ![]() The National Autistic Society describes the distinctive features of a demand avoidant profile as: Whilst individuals with a PDA profile share similar difficulties to others with Autism spectrum disorder (ASD) – social communications and interaction difficulties, sensory challenges and some restrictive/repetitive behaviours – their central difficulty is an anxiety-driven need to be in control and avoid everyday demands and expectations to an extreme extent. Pathological Demand Avoidance (PDA) is a profile on the autism spectrum.
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